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E-Prescribe – What does it take to make it Patient-Centric

I’m starting a series of posts on what does it take to make healthcare IT really patient-centric. If we started with the requirements, gathered from a patient, how would you build it.

It all started from a series of posts on Google+ Communities in which people mention that various applications are patient-centric. Maybe people do not realize what patient-centric really means… because I have trouble finding anything in our healthcare system that is really patient-centric.

I will try to address this from my point of view as  an IT savvy, healthcare obsessed e-patient and I will try to also think how it should be for a person that would check email once a day, but is scared of computers, technology, phones and wants the doctor to just tell her what to do.

How about e-prescribe – get the medicine prescriptions through a computer. Here’s what happens from a patient’s perspective right now!

– On the intake, the nurse or medical assistant asks me what is my preferred pharmacy. The options are that I know it quite well and she has it in her list. After a few fumblings with the pharmacy list, we can settle on the right pharmacy. The other option is that I don’t remember an address or even a name: that pharmacy that starts with Wal… One can easily see how the prescription can end up in the wrong place.

– The consultation goes on and my doctor settles on a medication to prescribe. If I am lucky and my doctor is open, I can look over her shoulder and visually check that this is the  medication I want, with the number of refills that I expect. We usually confirm my pharmacy one more time. If this is a new medication, I might not even understand the name, or maybe the doctor is using the generic name when I know the brand name or the other way around. Again, unless I look over her shoulder, it’s very easy to completely misunderstand what medication you got until you get that filled in at the pharmacy. Yes, one might ask a lot of questions from the doctor and the pharmacist, but this will not make it efficient.

– If I get a visit summary, I probably could see the medication prescribed and potentially remember to pick it up. I did not yet get any of those summaries, so i don’t know what information they contain.

– Assuming all is well and I don’t forget to pick up my prescription, I need to go to the pharmacy, tell the pharmacist my name and what I want refilled and 15 minutes later, I get it. As far as I know, there is no feedback to the physician – the doctor doesn’t know that I picked up my prescription or how many times I refilled.

I’m glad e-prescribe exists. But let’s accept it: it doesn’t fix much! It is a beginning, a good beginning, but it has ways to go! As Brian Pollack -a doctor – on the Google+ discussion mentioned: this is in its infancy!

So how should it be?

For a chronic patient that might have a few meds that work and he knows how to use them, I would give the patient a tool to

– Select the medicine and the amount (number of pills, bottles, etc.)

– Check prices at various pharmacies (there should be an app for that)

– Message the doctor asking for approval – doc should have at least a one year history of all the meds that patient is taking based on prescriptions filled in, Glow Caps or some other tool. Doc approves refills (maybe offline, in advance, with rules)

– Patient messages desired pharmacy and gets meds

For a new condition, doctor suggests a prescription for the e-patient:

– E-patient asks for options

– E-patient goes home and researches side-effects, how it works for others, etc.

– E-patient can message back and forth with doctor if he finds an option that seems better for him. Doctor can change the medications prescribed

– E-patient decides on an option

– E-patient checks prices and availability at various pharmacies (with information on copay from insurance company)

– E-patient messages pharmacy, pharmacy matches it with prescription from doctor

– E-patient gets the med she wants where she wants it

– Doc gets a message and note in EHR about the med and time of picking up the med.

New condition, patient is sick and wants a solution now, no time for research:

– Patient picks closest pharmacy

– Doctor sends prescription

– Medical assistant or nurse helps set up the patient’s pharmacy with the prescription

– Patient gets an email/text right away with all the info (can be visit summary)

– Medical assistant or nurse gets a note if med was not filled and calls patient the next day.

How does this sound?

 

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Regina Holliday’s Two Stories Jacket and Preeclampsia Awareness Month

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Regina Holliday #thewalkinggallery

One more time last night, I was in tears, tears of joy and disbelief. Tears that my baby is six, and as healthy as can be. Tears that he can sing and make jokes and play with his friends and be told by girls that he’s so cute.

It happens to me at every party and school concert and every milestone.

See, I have two stories in my mind all the time. Due to Regina Holliday and her #TheWalkingGallery I also have them on a jacket and I’m proudly wearing them at every health IT conference that I go to.

But back to my story… On my first pregnancy, I had preeclampsia. For me this was the disease that happens at the end of pregnancy and makes “them” decide to do a c-section instead of a vaginal delivery. Even though I was at risk for it, I was not told what to look for and what it is until I got into the hospital at six months with dangerously high hypertension. My first baby was stillborn and I was in the hospital really sick for another week after that.

One can imagine the fear, trepidation and amount of reading that we went through before and during our second pregnancy. My second son was delivered safely at 8 months and is as healthy as a kid can be. I still had high blood pressure throughout my pregnancy, but always knew what symptoms to look for.

 The Preeclampsia Foudation is an amazing organization where we went for information and emotional support. They are a source of engagement and empowerment of women to learn and know more about their health during pregnancy and beyond. It is Preeclampsia Awareness Month. Please head over and learn a thing or two. You might help a pregnant woman in her time of need!

A nice touch was the last ACOG meeting that recognized the importance of preeclampsia.